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Misdiagnosis?

Posted Nov 20 2009 10:01pm
This is a really difficult post to write. Not just because my hands are in so much pain right now, but because I'm questioning the last 10 years of my life.

Let me back up. If you've been reading my blog you know that I am dedicated to finding a natural cure and healing myself. I am passionate about this. But, it's been difficult and there have been disappointments and struggle. It's really difficult to share those with you all because I want to be successful and I want to share that success. But now it is time for me to start sharing more of the struggle.

Here goes:

Today my world got turned upside down. Or at least today I realized the potential for my world to get turned upside down. I'm being dramatic, but not unnecessarily.

I just scheduled an appointment to have myself tested for Lyme disease. Again. My mind is boggled right now so I don't know how to even begin explaining this. Okay, so some of you have heard of Lyme disease, and some of you may have even heard of the common misdiagnosis of RA to patients who in fact have Lyme disease. The thing is that the symptoms of Lyme disease and the symptoms of the autoimmune forms of arthritis are identical. This means the symptoms of PA, RA, JRA, SLE, AS and even CFS and Fibromyalgia are very, very similar to Lyme disease. Here is the list of symptoms at the Mayo Clinic website.

The reason why I'm having myself re-tested is because I'm getting huge pressure from the Universe... What I mean is this: a month ago, at a cooking class, I met 2 people with Lyme Disease and one of them pulled out their doctor's business card in front of me and the woman on the other side of me copied it down. Around the same time, I was in contact with a woman in my area about her Lupus diagnosis. She was re-diagnosed with Lyme disease within a week of me talking to her. Then, a week later my parents went out to dinner with my friend's mom who used to have Lyme and she encouraged my mom to make sure I get re-tested. I called her and she gave me the number for the same doctor that the women at the cooking class had talked about. Coincidental? One of our local government candidates even mentioned the growing problem of Lyme disease misdiagnosis during her campaign. This morning we found a deer tick on my cat. Get my point? Finally, what has brought me into this state of mind-boggledness is that I just got off the phone with my health counselor and she told me that the number one thing I need to be focusing on for my health right now is getting re-tested for Lyme disease. ...Um, all I've been focusing on my diet and that sauna! This is an outrage. (But thank you, Universe, for sending me all the signs. Now I just need to figure out why you're sending them to me.) So I called the doctor that night and set up an appointment for December 4th. I don't know if I can wait that long.

Why re-tested? Why wasn't it right the first time? I don't know the complete answer to this question, but the best explanation I can give is that Lyme disease can be a few different viruses or bacteria, I'm not sure which. I need to do my research. The blood test that a normal physician would order does not include a test for all "strains" of the bacteria and/or viruses that cause the symptoms of Lyme disease. I recommend googling "misdiagnosis of Lyme's disease" if you want more info.

Anyway, the reason why I'm freaked out is because of the question, Have I been misdiagnosed for 10 years? All of my symptoms are identical to Lyme. But what if it's not Lyme? I'm so confused. I don't know what to think or even if I should think about it at all. What the hell. This is ridiculous. Right before Thanksgiving, too! geezzz

I guess I just need to get the test. I'll let you all know how it goes. I really doubt that it is Lyme disease, but I need to cover all my bases. Meanwhile I'll be eating my greens and sweating in the sauna. And please talk to me if you know anything about this.
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