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1May 12, 2009Today is Fibromyalgia Awareness Day

Posted May 12 2009 12:00am
This year’s theme is “Fibromyalgia Affects Everyone” and the goal this is to emphasize the sweeping effects of the disease – “from broken lives the economic costs to patients and society.” The NFA’s Walk for FAME (Fibromyalgia Awareness Means Everything) is the most significant aspect of this campaign for awareness. 
Other 2009 Awareness Day Campaign Elements include: NFA’s Weekly Live Podcasts ( click here ) NFA’s 2nd Annual Walk of FAME (Fibromyalgia Awareness Means Everything) Virtual Walker Opportunity Walk of FAME Drawing Media and Community Outreach ( click here for sample press release ) Candlelight Observance ( click here ) Proclamation Program ( click here ) “Fibromyalgia Affects Everyone” Events (i.e. seminars, car shows) Pledge to Care Program ( click here ) Awareness Day Products ( click here ) Post-Event Slide Show ( send us your pictures ) In addition to participating in the walk, here are other things participants can do: Participate as a “virtual” team or walker by signing up on NFA’s Walk of FAME website and encourage your friends and family members to support you or join your team
Post National Fibromyalgia Awareness Day information on blogs, discussion boards and social network sites, such as Facebook and MySpace (as I have done here) Host an alternative awareness event and post your event on NFA’s Community Events Page ( click here ) Participate in the 2009 Proclamation/State Resolution program ( click here ) Share your personal story with the media There are local events being held all over the country. For more information, click HERE . Some Facts about Fibromyalgia (FM) Fibromyalgia is one of the most common pain condition diseases. It is believed that 10 million people in the United States are affected by the condition. Moreover, it is estimated that 3-6 percent of the world’s population is affected as well. 75 to 90 percent of FM suffers are women, but the disease also effects men and children of all ages and ethnic groups. The disorder is common in families, “among siblings, mothers and their children.” Diagnoses are usually made between ages 20 to 50 and incidents/diagnoses rise with age. Symptoms of Fibromyalgia include: chronic widespread body pain, which is the primary symptom of the condition. Most suffers also experience moderate to severe fatigue, sleep disturbances, sensitivity to touch, light, and sound, and cognitive difficulties. Many individuals also experience a number of other symptoms and even suffer from other overlapping conditions such as irritable bowel syndrome, lupus and arthritis. The cause of Fibromyalgia is a mystery but new findings continue to bring doctors, patients and researchers a basic understanding of the disease. Moreover, there is currently no cure for FM but better methods of diagnosis and treatment of chronic pain continue to be developed. National Fibromyalgia Association The National Fibromyalgia Association is a non-profit organization whose mission is: To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. The association was founded in 1997 in Orange, California by Lynne Matallana and Karen Lee Richards. The NFA is now the largest nonprofit organization working to support people with fibromyalgia and other chronic pain illnesses. The NFA offers a number of resources including access to support groups – locally, nationally and online. For more information visit the NFA website regarding support or click on any of the following links regarding online support groups. Online Groups Billie’s Help Page for Pain Understanding Chronic Pain & Fatigue Speakout Faith, Family, and Fibromyalgia Fibromyalgia/Chronic Pian Online Support Group Fibromyalgia & I Fibro Care and Support Fibro Friends Forever Fibro Friends International Fibropains Fibroworks Forums Maryland Bay Area Dysautonomia/OI/CFS/FM Support Line MD Junction Fibromyalgia Support Group CFSFM.org Ray of Light Reaching Out Talk About Sleep Undiagnosed As a long term sufferer of the condition, I can tell you that support is essential and it is the best decision you can make for your self. Source: National Fibromyalgia Association
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