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ANNGREGORY74 Patient Expert

Denham Springs, Louisiana
I was diagnosed with ALL in Jan 2007. Had a cord blood transplant in May 2007. Leukemia came back in June 2008. I was able to have an allo transplant in Sept 2008 using a 9/10 MUD.
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Phase 1

So Phase 1 of our three part plan is underway. Ann is currently on her 4th round of radiation which will eventually deliver about  50 GY to the...

End Game

Chris here It has been a busy week and lots has happened much of it unexpected.  It started Sunday morning when Ann told me the...

Progress

I saw my local oncologist yesterday for my regular follow-up visit. My blood work numbers were good, save for my creatinine. It's up to 1.5 again....

Frustrated

I don't know what to say. I didn't think this would be as hard as it has been. I stopped eating solid foods a few weeks ago and have had a very...

Finished, Maybe?

I had my final radiation treatment on Wednesday. 33 in total. As for what happens now, I don't really know. My creatinine levels are...

Latest Activity

process-indicator
Keiko Y. and ANNGREGORY74 are now friends. Jan 27 2012
ANNGREGORY74 and NSRobinson are now friends. Jul 13 2010
NSRobinson wrote on ANNGREGORY74's Whiteboard. Jul 12 2010
ANNGREGORY74 posted a week off Jan 10 2010
ANNGREGORY74's Whiteboard
Jul 12 2010 by NSRobinson

I came across your blog as I was looking for more info on GVHD. My 8 year old daughter, Sara, was diagnosed with ALL on January 16, 2009.  On May 26, 2009 she received a stem cell transplant at MD Anderson.  She's been through so much (like you).  She also had Marigold as her physical therapist!  Sara has GVHD (rashes) and is on Tacro and Prednsione.  I have no idea how Sara feels and it is nice to read your blog to get some kind of idea what you two go through.  Hope all is well!

 

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