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Andrea P. Patient Expert

I am a writer, ex-teacher and sufferer of Myalgic Encephalopathy (ME/CFS). I live with my husband and two adorable cats in a beautiful cottage on the wilds of Dartmoor.
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Reply from DoH (Re: Letter to Paul Burstow of 2nd March) by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Permission to Repost Our ref: DE00000597428    Dear Ms Pring, Thank you for your further email of 2 March to Paul Burstow about myalgic encephalom ... Read on »
ME/CFS Bloggers Unite by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Following the success of XMRV Bloggerama Day and PACE isn't for ME, Action Now has created a special blog ring for all ME and CFS bloggers wishing to share their know ... Read on »
ME/CFS Blogger Army: PACE Isn’t For Me by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome PACE Isn't for ME's aim was to launch accurate information on PACE into cyberspace and counteract all the recent 'space junk' produced by vested-interest groups aligned ... Read on »
PACE trial aftermath: ME Association writes to the Science Media Centre by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The following email has been sent today to Fiona Fox (Director) and Helen Jamison (Senior Press Officer) at the Science Media Centre. Posted by Tony Britton on ... Read on »
Science Media Centre and the Death of Free Press by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This communication is being sent on behalf of Margaret Williams. On the 17th of February, a press conference was held at the Science Media Centre to announce the e-publi ... Read on »
Biological Warfare Weapons Development and Testing by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome 1980's: Tests of new disabling disease pathogens somewhere in the U.S. and Canada. At the same time mystery diseases were breaking out as far away as Incline Village, Nevada ... Read on »
Letter to MP Paul Burstow Re: Adjournment Debate on ME by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Permission to Repost Dear Mr. Burstow, Following your recent speech in parliament as part of the ME adjournment debate, we would like to address several issues that ... Read on »
Tears for ME by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I'm collecting all the tears that are shed for ME; teardrop after tiny teardrop, until they fall to the ground in a puddle; until the puddle becomes a restless stream; unt ... Read on »
Call for Action For M.E. Resignations by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Without the support of AFME the PACE trial may not have been funded.   While AFME expressed their firm support for the funding of PACE, the other main ME charity called f ... Read on »
MRC Responds to Professor Malcolm Hooper by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This communication was sent on behalf of Professor Malcolm Hooper.   Medical Research Council Professor Malcolm Hooper, 2 Nursery Close, Su ... Read on »
Professor Malcom Hooper Threatened by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Communication sent on behalf of Professor Malcolm Hooper Because of the serious nature of the criticisms I received in a recent communication, I thought it necessary to ... Read on »
Collective International Professional Response to PACE Required? by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome contact@angliameaction.org.uk  to CO-CURE Dear All, I write in response to the just-published results of the UK MRC/DWP-backed PACE Trial on 'CFS/ME' in The Lancet[1]. ... Read on »
National ME/CFS protest action in Brussels 14th of March 201 by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Call in the interest of all patients who suffer from ME/CFS and fibromyalgia in Belgium!  Because the government policies regarding the above mentioned conditi ... Read on »
ME/CFS Blogger Army: PACE isn't for M.E. by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Drown out the forthcoming news reports on the flawed PACE Trial by writing your own blog post. This follows on from the recent XMRV Bloggerama Day. If you are unable to writ ... Read on »
Response from Jo Best to UK National Research Ethics Service Apology to Phil Parker by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome You can read the letter from Joan Kirkbride of the NRES with the apology to Phil Parker in the note here 8th February 2011 Dear Joan, I refer to your letter of 4th ... Read on »
XMRV Bloggerama: We've Only Just Begun by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The aim of XMRV Bloggerama Day was to get correct and detailed information on XMRV out into cyberspace and counteract all the recent disinformation. The campaign relied on b ... Read on »
ME/CFS Events and Actions by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The calendar will be updated regularly. Please feel free to share the page link. If you have any events you think should be included you can contact me at andreapri ... Read on »
Dr. Nancy Klimas & ME/CFS Worldwide Patient Alliance on Issues Surrounding ME/CFS & XMRV by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome In January 2011, Dr. Nancy Klimas from the University of Miami and Tina Tidmore from the ME/CFS Worldwide Patient Alliance (MCWPA) were interviewed on the community radio st ... Read on »
Breaking News from ME Association - MRC Invests £1.5m to Encourage Further CFS/ME Research by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome From the ME Association on Facebook Tony Britton, Publicity Manager, ME Association ------------------------------------------- MRC invests £1.5m to encourage furthe ... Read on »
Professor Malcom Hooper's Reply to MRC rejection of PACE Trial complaint by Andrea P. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Permission to repost From Malcolm Hooper Ph.D.,B.Pharm.,C.Chem.,MRIC Emeritus Professor of Medicinal Chemistry University of Sunderland, SUNDERLAND SR2 3SD ... Read on »