Amy Silcox's Posts - Wellsphere

Perpetually Exhausted by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis That is me. Perpetually exhausted. This Zosyn is kicking my ass! But it is also working its magic on me! My lung function has gone up 12%!!!! I was 32% 3 weeks ago an ... Read on »

Home Again by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis I got home around 8:30 last night. The hospital stay was pretty uneventful. I had the PICC placed on Tuesday, and Wednesday they had to pull it out 4cm. Apparently the ... Read on »

Self Perception by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Don't worry this isn't another weight related post. This one is all about the inside. With Kalydeco' s wonderful results and the start of phase 3 for Vertex 809 (combo m ... Read on »

Friendships by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Having CF makes making friends a bit more difficult. I can't do the "normal" thing, make a friend and have it turn into something good. I have to be careful because not al ... Read on »

Another Horse Post by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis How many times have I written about horses and getting back into riding? Too many to count right? Well sorry but here is another post. I can't tell you how much I MISS ... Read on »

Hospital Shopping by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis I haven't been out shopping for new things for hospital stays in a long time. So after I dropped my step daughter off at the train station I drove myself to Target. I n ... Read on »

Identity by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Why is it that we look upon ourselves so much harsher than the rest of the world? Why can't we be happy with the way in which we look? Why must I stress myself out that I ... Read on »

Clinic Results by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Clinic was pretty much what I was expecting. I went from 1.08L to .95L (37%-32%). So it is definitely an admission for me. Luckily we are waiting till Monday so I can ... Read on »

IVs are on the horizon by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Tomorrow I have clinic and I am not looking forward to it. The past week my lungs have really gone downhill. My ability to walk has decreased - the speed on the treadmill ... Read on »

O2 Study by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Friday night I had another O2 study done while I slept. They are picking the device up today so it will be a few days before I hear anything back. Plus I have a clinic app ... Read on »

Game On! by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis My weight back in January was 58.1 kgs or 127.8 lbs My weight today, thankfully, was 57.2 kgs or 125.8 lbs I have lost 2 lbs and that was WITH trying. I have 7.8 lbs ... Read on »

Birth Control Controversy by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis P and I were discussing the new issue surrounding birth control that has come up in this country lately. I am not up to speed 100% so please forgive me for any inaccuracies ... Read on »

St Patty's Day Babies and Tears by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Today is another bad baby day. It's St Patrick's Day and facebook is flooded with pictures of kids dressed in green. Its breaking my heart </3 Today I want a baby more ... Read on »

Something to do with Myself by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis Lately I have been feeling really antsy and bored with my life. The whole not working thing has finally caught up with me. Not too shabby that I have been on SSDI for almo ... Read on »

Wanning Blog Readers by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis I have noticed lately that my posts aren't been read as much as they used to be. I want t change this. I miss the days of 300 views for one post (yes my ego is hurt by the ... Read on »

Exercise Regime - Days 5-8 by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis I may not have posted about them but I exercised Monday through Thursday again. 30 minutes each day on Wii step aerobics. Monday I only did 20 minutes because I was feelin ... Read on »

Sleeping by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis A friend of mine posted about sleep patterns with advancing stages of CF and the amount of sleep needed. It got me thinking. Am I sleeping as much as I NEED or as much as ... Read on »

Kony 2012 - end the violence by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis KONY 2012 Watch this video then visit www.kony2012.com to find out how YOU can help stop this madman from tearing children away from their parents just to join his army ... Read on »

Exercise Regime - Days 3 & 4 by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis I forgot to post on Wednesday and Thursday. I did 30 minutes each day again of step aerobics on the wii. Today I took a break. I figure 4 days is good for my first week! ... Read on »

Breathless Bride: Dying to Breathe (TLC Special) by Amy Silcox Patient Expert

Posted in: Blog Posts in Cystic Fibrosis I cried when she walked down the aisle. I laughed and nodded when she asked why she wore a bra that day (as they went out shopping). I hate wearing them because they res ... Read on »

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