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Amy Silcox Patient Expert

Wakefield, Massachusetts
I am a 29 year old CFer living outside of Boston. I stopped working full time right before Christmas and will be applying for SSDI soon. I live with my boyfriend and his daughter. I love to crochet and read and nothing is more satisfying than seeing something you made on someone you love.
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Surgery was one week ago by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I it technically Monday morning, one week since my surgery. I'm due to be discharged today. I'll update more when I get home and settled but wanted to post that I made it th ... Read on »
Bot sure what to do with my time by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I am so booooooored!!! I have spent the past three years working my ass off day and night to write papers and read book after book for school.  So now I find myself with ... Read on »
In Training for my Life by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been a while, I know.  Sorry.  It has been a hectic few months. My pancreatic surgery is scheduled for July 28th.  So that means July 7th I will go inpatient to sta ... Read on »
Surgery is a MUST by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I was told I HAVE to have the cyst removed.  No but's about it.  So I see the surgeon in May and we will decide on a date then. Once we pick a date my CF doc will schedul ... Read on »
Evaluation Date Set by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I was surprised when transplant clinic called me the other day to set up my appointments...for February 19th.  Holy soon batman!  Its going to be a very long day with not mu ... Read on »
Finished Processing by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis OK so the long awaited, or not, update. I have had over a week to process all my information and I think I am at a good point. The thing is I HAVE to get this cyst fro ... Read on »
In the Process of Processing by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I met with the pancreatic surgeon yesterday and my CF doctor today.  There is a lot of information to talk about.  But I need some time to process it all.  Once I do I will ... Read on »
Tobi Podhaler by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I started the pod haler on Friday.  So far it hasn't been awful to use.  I only have a 7 day trial so I won't get the full 28 day dosing, but we are doing it to see how my l ... Read on »
One More Week by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis One more week to go on Ceftaz...yaaaaaay *sarcasm* I can deaccess on Monday.   I'll be down there anyway for a derm appointment so I am going to go in after to do PFTs. M ... Read on »
Home from the Hospital by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I am home from the hospital.  I actually got out on Monday but I have been so busy finishing up my paper, that I turned in Wednesday, and appointments, that I haven't been a ... Read on »
It's That Time Again by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis Yup it is time for IVs!!!  This way I will feel fabulous (or as fabulous as someone with my lung function can lol) for Christmas and visiting my family. I blew some r ... Read on »
Time again for IVs I think by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I had to bump my clinic appointment up to this Tuesday from December 17th.  Its only a 2 week bump but with Thanksgiving there was no way I could get in any earlier. Any ... Read on »
Nothing out of the ordinary by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I realize its been almost 2 months and I have no excuse, only an apology.  Just really busy.  I guess that is a good thing right?  Lots of things coming up this month though ... Read on »
Fabulouso by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis Today's clinic went a little better than I had thought it would.  They just updated their PFT cart so now there isn't a flexible tube, but instead a rigid stand.  They also ... Read on »
Surviving by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis When you have CF you spend your life waiting for the ball to drop on your health.  You live life as best as you can: you go to college, you get a job in your field, you stop ... Read on »
PRIDE by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis Pride It's a greedy little bastard that keeps us from doing things we KNOW are right. Pride It's one of my many faults. Pride It's something I WILL overcome. ... Read on »
Nothing Here by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I realized today its been over a month since I last blogged.  Sorry.  Not much to report which is a good thing I guess! I have a clinic appointment in a few weeks so aft ... Read on »
They Say the Numbers Don't Mean Anything by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis Well Tuesday I was de-accessed at clinic.  So glad.  I was totally over IVs.  Unfortunately instead of my lungs improving with another week they went down. I was a littl ... Read on »
Feeling Better...Almost Normal by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis Well let's see what has been going on the past two weeks?  I was admitted on the 28th, Friday.  Originally I was supposed to go in Thursday, then it was pushed to Monday the ... Read on »
Hospital Time!!! by Amy Silcox Patient Expert Posted in: Blog Posts in Cystic Fibrosis I was SO glad to see my numbers were horrible today!!!  It confirmed what I KNEW and also made it so I didn't have to beg and plead for a round of IVs! Last time I was 1. ... Read on »