I have been having some not so fun times in my head of late. I have gotten involved with Google+ with about 40000 people. The emails are crushing so I only read a few per page and do postings. I got one where a person was having trouble with their loved one who has Alzheimer's and whether to tell them that the person they were asking for was dead. The problem I have and maybe because I live with a different outlook and things do not mean the same, I answered tell the person, they will forget soon anyway no damage. Then you see all these long replies filled with dripping sympathy and saying the same thing. You that follow me know that i am one to be bllunt and tell it, do not beat around the bush. But see everyone on the other side of the fence knows better. They know how we feel, how we will react, what will make us sad, etc. etc. Really you know shit abbout our world. Yes bad news bothrs us, but we forget it quickly. What you do not understand is that Yesterday is so long ago and well Tomorrow who the hell knows anything about it we do not. All we know for the most part as we advane in this disease, condition or syndrome whatever you want to call it, is the moment, understand the moment, not 25 minutes ago or about 9 pm that is not here yet. You keep trying to pull us back into your world and cause confussion, frustration, anger, bitterness and give us a sense of being less than. Leave us be, help when we ask or reallly need it. Stay out of our faces, laugh with us do not treat us as if we are some creature from another realm. We are PEOPLE, treat us as such, you do not need to incllude us in everything, it is too much. The most important thing you can do for us is LISTEN to us and not tell us what we are saying, whether it is right or wrong to YOU, because it is RIGHT to us and that is all that matters.
You will see a film clip on the side bar, it is about, bibs for those of us who have holes in our chins when we eat. I will be getting one, but as you know I do not push or sell for others, this is a resource for you to look at and see if it wil be useful.
The more i try to get less involved the more I seem to be suck into things. Not in shady ways I have a smart wife for that and I can still smell the stink of things.
There is more in my head but it just will not come out. The disconnect between my brain and means of telling it are breaking down more. So for now till who knows when be good to yourselves.