Ginnie Horst Burkholder has written a moving, first person blog on what it is to be the well spouse of someone with Lewy body dementia. Titled "On the Long Road to Acceptance," it's well written, informative and a tribute to the spirit of this fine woman and her husband. I don't know you Ginnie, but I wish I did.
Ginnie begins her post:
"It seems like a lifetime ago that we were first confronted with the words “Lewy body.” At that moment, we began the long road to acceptance. At times the journey has been daunting. Chronicled here are some of the thoughts along the way.