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Do you blog about your personal struggles with Alzheimer's?


Posted by Rosemary M.

If so, how has the online community been helpful, and in what way?

I'd love to know what you find most helpful.

In health,

Rose :) 

 
Answers (4)
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My father found most solice in joining and helping the local altzhiemers group and helping others to avoid making the same mistakes he did
Thanks for sharing what helped your father to find solace.  Reaching out within our community seems is difficult for caregivers who carry shame and truths about how debilitating this disease can be - emotionally, physically and mentally.  Thank God for the Alzheimer's Association.  I hope your father was able to establish an ongoing dialogue with them.  My mother suffers much of the burden under the veil of silence - she is too private to share with others outside of our family.  I worry about the toll it is taking on her health.  We continue to offer as much support and information as possible but removing the stigma of keeping it private remains difficult.  I really love the Alzheimer Reading Room for its balance in providing education and personal stories.  Hope your father has visited this site.  Wishing you all the best in health and happiness, rose :)

I have a blog about my experiences as a caregiver for my mom with Alzheimer's.

I have friends on Facebook who are also bloggers and have the disease as well. Norman Mac and Rich Phelps are two that I can think of.

 I have links on my website for Rick Phelps' Videos. He has early onset Alzheimer's disease. (EOAD) and makes a video every day so that others might follow his progress. His desire is to further awareness of Alzheimer's to attract attention and increase research.

Rick Phelps has also created a Private Group on Facebook. "Memory People."

Sandy

Thanks Sandy.  As you can see from my blog site, I am writing about what I consider to be an important and often undervalued side of alzheimer's: the struggle of the family and caregivers.  I would love to check out Memory People.  I have learned so much by watching videos and hearing people like Bob Marcos who continue to learn and share online.  I look forward to following you. Best, Rose
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