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Alyson

Somewhere, Texas
I am 33 years old, and I have had CFIDS/CFS/ME for my entire adult life. I also suffer from a long list of other chronic conditions, including asthma, allergies, PCOS, IBS, NKC-deficiency, glutathione-deficiency, migraines, and more. I embarked on a gluten-free, dairy-free diet in early 2011... Full Bio
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Advocacy Alert: Federal CFS Advisory Committee by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome This just in from the CFIDS Association: Nominations for Federal CFS Advisory Committee Sought Today's Federal Register includes an announcement soliciting nomination ... Read on »
Feeling Much Better Now by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Thank you to everyone who posted words of support! I'm feeling much better now. Of course, I'm still as tired as ever, but my mood has improved greatly since the weekend. ... Read on »
Feeling Down and Stressed by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I've been feeling down since yesterday. (I haven't felt this down in a while.) I've figured out that there are a number of reasons why I'm feeling so blue. Work has be ... Read on »
Current Medications and Supplements by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome During one of my phone conversations with the Georgetown research people, I was asked to email them a list of my current medications and supplements. I kept putting this off u ... Read on »
Hoping to be a Human Guinea Pig by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Disclaimer: My brain fog is acting up today, so I can't remember what I've already said about the following topic (and I'm mentally too tired to read through my blog to find o ... Read on »
A Weekend in North Dakota by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome This is what it looks like to have four children, all of whom are girls... My husband Kenny and I spent this weekend in rural North Dakota visiting family we hadn't seen ... Read on »
Weekend Trip & Quick Update by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I've been super busy preparing to leave town this weekend. Kenny and I are going to visit family in North Dakota for the weekend (a whirlwind trip!), so I haven't had much tim ... Read on »
Research Alert: Chronic Illness Survey by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I'm happy to be posting another research opportunity! The University of Michigan's Center for Managing Chronic Disease and Advocacy for Patients with Chronic Illness, Inc. wer ... Read on »
The Big Chop by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome ( before ) Before today my last real haircut was in June of 2008. Today I had 12 inches of my hair chopped off to be donated to Locks of Love. From their website: ... Read on »
Research Alert: CFS Genetic Study by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I learned about a CFS genetic research study at the University of Illinois at Chicago through Sue Jackson's blog. This is one of the studies I mentioned in yesterday's post. ... Read on »
An Exhausting Week by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I'm so glad it's Friday! This week has been exhausting...so exhausting that I'm too tired to write about it... I can feel a crash coming on (the lymph nodes in my neck have be ... Read on »
Simple Banana Bread Recipe by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I know this blog is supposed to be about my life with CFIDS, but I got this banana bread recipe from a friend and only recently had enough energy to try it out...twice! It's a ... Read on »
Know of any successful treatments for stubborn eczema spots? by Alyson Posted in: Questions & Answers in Skin Health I have had eczema for years and have tried all sorts of treatments: Rx and OTC steroids, Elidel, acupuncture, and various creams, oils, and lotions that claim to "cure" ecze ... Read on »
Research Alert: More Research Opportunities by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome It occurred to me that it could be useful to post additional CFS research opportunities. These research descriptions are from the U.S. National Institutes of Health ClinicalTr ... Read on »
Research Alert: Georgetown CFS Study by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Do you or does someone you know live near Washington, DC? Georgetown University is currently conducting a research study called "Proteomics of Cerebrospinal Fluid in Chro ... Read on »
Controversy & Needing a Laugh by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome After reading about a recent controversy in the CFS community, I was saddened by all the anger on both sides. In a nutshell, a dramatic ME/CFS recovery story was posted ... Read on »
National Fatigue Survey (US only) by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Rather than trying to summarize in my own words, here is the information directly from the website: The Fatigue Management Institute is conducting a nationwide survey of ... Read on »
Mono and CFS in Teens by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I just got back some belated blood test results and was told that I had high EBV levels at the time of the test (a few weeks ago) -- see Human Pincushion for background on all ... Read on »
A Good Point About My Symptoms by Alyson 4 Comments Posted in: Blog Posts in Chronic Fatigue Syndrome A new person visited my blog the other day and posted the following comment which made a good point: Hi! I've been reading random blogs lately and I had a question abo ... Read on »
Childhood Dreams by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome It occurred to me the other day that I don't actually know what it's like to be a healthy adult. Believe it or not, this realization was startling to me. Most of ... Read on »