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Alyson

Somewhere, Texas
I'm a thirtysomething female, and I've suffered from a number of chronic illnesses for my entire adult life, including allergies, asthma, eczema, GERD, IBS, ME/CFS, migraines, myopathy (muscle weakness), PCOS, pre-diabetes, and more. Most recently, a rheumatologist diagnosed me with a... Full Bio
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Advocacy Alert: CFS Advisory Committee to meet in October by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome This just in from the CFIDS Association: CFS Advisory Committee to meet in October The federal CFS Advisory Committee will meet next on October 28-29, 2009 in Wash ... Read on »
Thief! Stealing our marriage (Post by Kenny) by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome The following post is the second of several by my husband, Kenny. Thanks for reading! ~Alyson *********** Having a loved one that has CFS is like being ripped off. T ... Read on »
Research Alert: U of New England, Australia - Fatigue Study by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Text from the CFIDS Association Bulletin Board (i.e., posted items are not subject to review): Project Title: Predictors of subjective fatigue in three samples: chronic fa ... Read on »
Research Alert: University of Utah Fatigue Study by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Text from a fellow blogger's website: Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests a ... Read on »
Lack of support: Medical (Post by Kenny) by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome The following post is the first of several by my husband, Kenny. Thanks for reading! ~Alyson *********** Ignorance, it is a pervasive mindset that transcends educati ... Read on »
Research Alert (2nd posting): National Fatigue Survey by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome The other day someone from the Fatigue Management Institute visited my July 30 post, National Fatigue Survey (US only). Here is the comment he/she left on August 25: Tha ... Read on »
Advocacy Alert: Federal CFS Advisory Committee by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome This just in from the CFIDS Association: Nominations for Federal CFS Advisory Committee Sought Today's Federal Register includes an announcement soliciting nomination ... Read on »
Feeling Much Better Now by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Thank you to everyone who posted words of support! I'm feeling much better now. Of course, I'm still as tired as ever, but my mood has improved greatly since the weekend. ... Read on »
Feeling Down and Stressed by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I've been feeling down since yesterday. (I haven't felt this down in a while.) I've figured out that there are a number of reasons why I'm feeling so blue. Work has be ... Read on »
Current Medications and Supplements by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome During one of my phone conversations with the Georgetown research people, I was asked to email them a list of my current medications and supplements. I kept putting this off u ... Read on »
Hoping to be a Human Guinea Pig by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome Disclaimer: My brain fog is acting up today, so I can't remember what I've already said about the following topic (and I'm mentally too tired to read through my blog to find o ... Read on »
A Weekend in North Dakota by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome This is what it looks like to have four children, all of whom are girls... My husband Kenny and I spent this weekend in rural North Dakota visiting family we hadn't seen ... Read on »
Weekend Trip & Quick Update by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I've been super busy preparing to leave town this weekend. Kenny and I are going to visit family in North Dakota for the weekend (a whirlwind trip!), so I haven't had much tim ... Read on »
Research Alert: Chronic Illness Survey by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I'm happy to be posting another research opportunity! The University of Michigan's Center for Managing Chronic Disease and Advocacy for Patients with Chronic Illness, Inc. wer ... Read on »
The Big Chop by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome ( before ) Before today my last real haircut was in June of 2008. Today I had 12 inches of my hair chopped off to be donated to Locks of Love. From their website: ... Read on »
Research Alert: CFS Genetic Study by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I learned about a CFS genetic research study at the University of Illinois at Chicago through Sue Jackson's blog. This is one of the studies I mentioned in yesterday's post. ... Read on »
An Exhausting Week by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I'm so glad it's Friday! This week has been exhausting...so exhausting that I'm too tired to write about it... I can feel a crash coming on (the lymph nodes in my neck have be ... Read on »
Simple Banana Bread Recipe by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome I know this blog is supposed to be about my life with CFIDS, but I got this banana bread recipe from a friend and only recently had enough energy to try it out...twice! It's a ... Read on »
Know of any successful treatments for stubborn eczema spots? by Alyson Posted in: Questions & Answers in Skin Health I have had eczema for years and have tried all sorts of treatments: Rx and OTC steroids, Elidel, acupuncture, and various creams, oils, and lotions that claim to "cure" ecze ... Read on »
Research Alert: More Research Opportunities by Alyson Posted in: Blog Posts in Chronic Fatigue Syndrome It occurred to me that it could be useful to post additional CFS research opportunities. These research descriptions are from the U.S. National Institutes of Health ClinicalTr ... Read on »