Health knowledge made personal

AliRae Patient Expert

I'm Ali, a 25-year old pediartic nurse who lives and works on a hospital ship docked off the coast of West Africa.
› Share page:

Posts

Sort by: Most recent | Name
equal parts by AliRae Patient Expert Posted in: Blog Posts in Nursing At morning rounds last Sunday, the resident following Ethan's case took a deep breath and listed his heart defects and his history up until now, stumbling a bit over so ... Read on »
a hundred and thirty-eight by AliRae Patient Expert Posted in: Blog Posts in Nursing I feel like I've been doing nothing but throwing the darker pieces of my heart at you here recently, and I am so grateful for the way that you have carried them when th ... Read on »
sparrows and lilies and babies and me by AliRae Patient Expert Posted in: Blog Posts in Nursing I feel paralyzed right now, weighed down by the length of time stretching between my last words and these ones, unsure of how on earth I'm supposed to choose the right ... Read on »
my mustard seed by AliRae Patient Expert Posted in: Blog Posts in Nursing We just got back from another cardiology appointment. All of this is starting to feel normal. Pulling up to hospitals and filling out forms and using every trick in m ... Read on »
speak up by AliRae Patient Expert Posted in: Blog Posts in Nursing I've been looking back over old posts on Instagram and Facebook and here on the blog, taking a moment while Ethan is asleep to see his journey unfold all at once instea ... Read on »
losing sight of shore by AliRae Patient Expert Posted in: Blog Posts in Nursing The four of us were sitting around the table tonight, enjoying Chinese takeout. (Well, to be totally accurate, Phil, Zoe and I were enjoying it; Ethan was asleep in the ... Read on »
introducing ethan by AliRae Patient Expert Posted in: Blog Posts in Nursing My son is a month old now, and so I suppose it's high time I let you know he's arrived and that he is living up to the promise of his name in ways we didn't even dare t ... Read on »
hard to believe by AliRae Patient Expert Posted in: Blog Posts in Nursing It's still hard to believe that this is the view from the balcony where I eat my dinner most nights, safely holed up in the home of the complete strangers who did ... Read on »
mommy, where are you? by AliRae Patient Expert Posted in: Blog Posts in Nursing It's ten-thirty on Tuesday night, and I should be in bed. But yet again Zoe just woke up screaming (her sleep has been a bit rocky since the move to Philadelphia), and ... Read on »
new dreams by AliRae Patient Expert Posted in: Blog Posts in Nursing The day everything changed was the last day of winter. On Saturday the hardest spring of my life will give way to summer, and somehow I've lived through almost an enti ... Read on »
the mama i'm going to be by AliRae Patient Expert Posted in: Blog Posts in Nursing It's funny how your perspective can shift so wildly, how a good day can come to mean something so different than it did a few months ago. Today was a good day. We spe ... Read on »
five minute friday: nothing by AliRae Patient Expert Posted in: Blog Posts in Nursing It's Five Minute Friday again, the time in the week where we stop what we're doing and write for five minutes (or, in my case this week, a few more, since sometimes you ... Read on »
okay now? by AliRae Patient Expert Posted in: Blog Posts in Nursing There are moments along this journey that break my heart and ones that make me think that maybe I'll make it through after all. I think, in some ways, the hardest time ... Read on »
thirty-nine days by AliRae Patient Expert Posted in: Blog Posts in Nursing Today marks thirty-four weeks of pregnancy, and internet sources differ as to whether Ethan's roughly the size of a cantaloupe or a butternut squash. If only that were ... Read on »
coming home by AliRae Patient Expert Posted in: Blog Posts in Nursing Is there a word for how it feels to experience pretty much all the emotions at the same time? Because that's me right now. Phil's flight is set to board in less t ... Read on »
more than you can hope by AliRae Patient Expert Posted in: Blog Posts in Nursing Troops, you can stand down. Thank you all so much for everything you have done over the past couple of weeks, whether it's been offering up rooms in your houses, s ... Read on »
light in the valley by AliRae Patient Expert Posted in: Blog Posts in Nursing I had a completely different entry all typed up and ready to publish, just waiting on the final word from the couple whose apartment we were going to stay in this summe ... Read on »
a couple clarifications by AliRae Patient Expert Posted in: Blog Posts in Nursing So, the internet is awesome. We don't have final plans in terms of a car or a place to stay yet, but the response to my last post has been pretty incredible. So m ... Read on »
the one with all the information by AliRae Patient Expert Posted in: Blog Posts in Nursing Where to begin? How to condense twelve hours of testing and ultrasounds and meetings and more information than I can possibly take in all at once? (This is an enormou ... Read on »
sunday always comes by AliRae Patient Expert Posted in: Blog Posts in Nursing I found out I was pregnant with Zoe during the season of Advent. Week by week we lit candles and celebrated hope and joy and peace and love, and every single time thos ... Read on »