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Alicia and Gavin

My name is Alicia and I started blogging after my son, Gavin, was born. He was born with Down syndrome and heart defects. He has been through a lot in his short life: 5 surgeries, months of hospitalizations, he suffered a stroke that has left him significantly delayed and with a seizure... Full Bio
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Then.....and.....Now by Alicia and Gavin Posted in: Blog Posts in Down Syndrome A week and a half ago Gavin went in for a sedated heart echo, and to have his pacemaker read. I usually get nervous before these visits...I spend time wondering if we will ... Read on »
I am so thankful for Gavin! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome A poem: I KNOW DIFFERENT by Tricia Proefrock ------------------------------------------------------------ Dear mommy, I have felt your tears, falling on my face. ... Read on »
Happy Gavin = Happy Momma! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome Gavin has been quite sick this week. I turn into one big anxiety ball when Gavin gets sick. I hate to see him feeling miserable! Plus, once you've spent time in the E.R ... Read on »
Bring the Rain by Alicia and Gavin Posted in: Blog Posts in Down Syndrome A few months ago the reality of caring for Gavin just hit me. I think it's when he suddenly grew a couple of inches and gained a few pounds. I realized that the future isn't ... Read on »
It Is Well With My Soul by Alicia and Gavin Posted in: Blog Posts in Down Syndrome We sang one of my favorite hymns in church this morning, and it's been on my heart all day long. I get tears, and sometimes even sobs, whenever we sing it. It always brings ... Read on »
It just hits me.....right in the heart! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome A couple of weeks ago I read something that caused me to spiral into tears. This happens to me every month or so. I can be having a perfectly fine day, and then a thought ... Read on »
Spread the Word! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome Today is "Spread the Word, to End the Word" day. So, Gavin and I are spreading the word! R-word | Spread the Word to End the Word retarded defined ( ... Read on »
Sharing Gavin's Newest Equipment by Alicia and Gavin Posted in: Blog Posts in Down Syndrome I am always looking for great ideas, equipment, and tools to use with Gavin. When you have a child who can't even sit up on his own, you are always looking for a spot to pl ... Read on »
Down Syndrome Basketball Player Inspires by Alicia and Gavin Posted in: Blog Posts in Down Syndrome Just watched this on Facebook and had to share! Down Syndrome Basketball Player Inspires Tennessee Team I had tears rolling down my face.....partly for this young ma ... Read on »
So much to say & share..... by Alicia and Gavin Posted in: Blog Posts in Down Syndrome .....not enough time, energy, or brain power to say it or share it! So, here I go.....prepare for a long post! Lots going on with Gavin, and our family the last couple ... Read on »
Part of the Club by Alicia and Gavin Posted in: Blog Posts in Down Syndrome This weekend I was reminded that I'm part of a club. This club is very inclusive, and you can't join unless you meet certain qualifications. Most people don't even want to ... Read on »
Purpose-Filled Life! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome It has been one of those days! A day that I sit and stare at Gavin, wishing that he had more purpose in this life. Wishing that he could sit on his own, walk, and talk. F ... Read on »
Step Up For Down Syndrome! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome It's that time of year again! Time to come out and walk with Gavin, and all of his cute friends! It's Buddy Walk time! Except this year the Down syndrome Association of ... Read on »
Gavin's afternoon at the hospital by Alicia and Gavin Posted in: Blog Posts in Down Syndrome Gavin and I spent the afternoon at the hospital. Here is a picture that I tried to take of Gavin while we were waiting in the waiting room He doesn't look very pleas ... Read on »
Five Years of Blessing! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome Happy 5th Birthday Gavin!!!! We Love You!!! I can't believe how blessed we are to have you in our lives! We thank God for you, and can't bel ... Read on »
How much should I tell people? by Alicia and Gavin Posted in: Blog Posts in Down Syndrome This week I had a dentist appointment for myself. I took Gavin with me for the appointment. He sat in his stroller next to me while I was having work done, and he be ... Read on »
(In)dependence by Alicia and Gavin Posted in: Blog Posts in Down Syndrome Our church puts out a monthly publication, called The Bethany Beacon. This month I wrote a little something for them to add to it. I wanted to update those at our church, ... Read on »
850! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome That is the number of pictures we took while we were away on Gavin's Make-A-Wish trip! I'm a little overwhelmed by so many pictures.....that's why it's taking me so lon ... Read on »
We're leaving on a jet plane! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome I have been a blog slacker this summer! I guess I've just been concentrating on family and my boys.....so I guess that's a great thing to spend time on if I'm not blogging! ... Read on »
Hi Friends! by Alicia and Gavin Posted in: Blog Posts in Down Syndrome Just wanted to give all of you a shout out from Gavin! My Mom says she has been very busy, so she hasn't taken the time to do any posts on the blog lately. Plus, h ... Read on »