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Alice V. Patient Expert

Johannesburg, South Africa
Blog: http://livinglifebreathlessly.blogspot.com/
I am a 23 year old with Cystic Fibrosis. However in january of this year I underwent a bi-lateral lung transplant, and now my lung function is 99%, and I feel completely normal. I also suffer from CF related diabetes, which is a walk in the park compared to not being able to breathe.
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TV interview by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Cold is almost over... yay! Made Chris sick as well... boo. Hopefully by next week we'll both be 100% again! Been a busy week as far as Drs are concerned. Saw gynae on Frida ... Read on »
Reunion by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Read on »
Upcoming trip to PE by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Two more sleeps then we leave for PE for my 10 year High School Reunion. Another long weekend yay!!! Will be our last mini-break until August when we go to Durban for the Na ... Read on »
Mapungubwe Pics by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Read on »
Botswana Pics by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Read on »
And we're back... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Arrived back from our trip yesterday late afternoon. What a great experience... Will post pics of the two destinations seperately so it makes more sense... Mapungubwe... ... Read on »
2 sleeps... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Then my sis and her hubby get here! Then another sleep before be leave for Mapungubwe and Botswana  !!!!!!!!!!! Last time I was in that area was 10 years ago and it was fant ... Read on »
Injury by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I've managed to obscurely randomly injure an old scar. No idea how or what I did, but on Monday I started feeling pain where one of my old drainage pipes were when I got my ... Read on »
Bad things always happen in 3's... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis So this week the CF community lost 3 of it's angels... Judette (28), Dominique (22) and Schamone (19). Dominique and Schamone were both waiting for lungs. It's really terrib ... Read on »
Autumn! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's autumn! Leaves are starting to change, there's a definite chill in the air... soon it'll be just plain cold :-( Although it will be a nice change, feels like it's been ... Read on »
Dullstroom weekend away by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Had a great weekend break-away to a farm outside a small town called Dullstroom. Didn't do much... slept a lot, made great food, drove into town on Sat fo lunch, went for a ... Read on »
Check Up by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis First Drs check-ups for the year done, next one in May! Saw dermatologist and tx docs this week... Dermatologist burnt a few warts-thingy's off again (side effect of my pill ... Read on »
Holiday report-back by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis OK OK I know we've been back for a week already! At least I posted photo's :-) Our week off was very nice... Jansenville was nostalgic. I took Chris to my grandparents old f ... Read on »
Mr & Mrs Pretorius!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Read on »
Storms River by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis ... Read on »
1 more day at work.... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Tomorrow's the last day of work before our holiday!!!!!!!! YAY!!!!!!!! Going in to work early, at 5h30 AM (same as today!). Then after work have to go to pharmacy, pack, dro ... Read on »
Guest Article - by Jenna Walters by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis One of by blog-readers asked if she could do a guest article. She is a recent college graduate majoring in English, passionate about writing about health issues. And come to ... Read on »
5 more working days 'till bliss!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis One more week of work!!!!! Don't even have Sunday blues, so excited! Saturday morning at 3am we'll be leaving for Jansenville where my grandparents are, spend 2 nights there ... Read on »
Celebrations by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Soooo, the celebrations have been as follows: Last Sunday had lunch at our place with my parents and some very special friends. Had a super afternoon with great food and awe ... Read on »
4 years!!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Read on »
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