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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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Thought-Filled Thursday: Humor & the Hospital by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This great article, compliments of our friends at Complex Child E-Magazine and founder Susan Agrawal , has lapped the social media special needs circles a bit over the pas ... Read on »
Word-Filled Wednesday: Spread the Word by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Grab yourselves a dictionary or perhaps you should invest in a thesaurus? thesaurus: noun a book that lists words in groups of synonyms and related concepts. ... Read on »
BUZZ: Wiki-What? by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health As my own daughters are beginning to do more and more research online for school, the same phrase I heard throughout my college years (yes, only my college years sin ... Read on »
Wordless Wednesday: Powerful! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Have you EVER watched a video in which there were either no words uttered... or no words that you could understand; yet it said SO very much? It's similar to the lives ... Read on »
Tried & True Tuesday: Nix Unnecessary Prenatal Testing by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This post could teeter on the edge of controversial for some, so I am just not going to delve in to the specifics... not today anyways! This post will be semi-short & rela ... Read on »
Feeding Tube Awareness Week Kick-off by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Today marks the start of an immensely important awareness endeavor Feeding Tube Awareness Week is February 9-15, 2014. Always the second week of February, so as to coincid ... Read on »
Bee-ography: Jayne Katherine by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health On Christmas Eve I opened my email inbox to discover the usual Google alert regarding new posts containing the word "hydranencephaly" within them and moved it to my "read ... Read on »
How're Things Stacking Up? by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Having a child with complex medical needs is a difficult enough position to find yourself in as a parent. Fighting to provide your child with the best quality o ... Read on »
Thought-Filled Thursday: ONE by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I've met head-on with several nasty remarks and equally disgusting opinions on the topic of hydranencephaly over the course of the past 6 years. It's part of being an advo ... Read on »
Tried & True Tuesday: Globe-Trotting! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health We've tried it all...  sharing stories bunking "myths" squashing false "facts" threats Ok, not threats... well, not usually ;) But, the one effort that always sna ... Read on »
Thought-Filled Thursday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I HEART Maysoon Zayid! Seriously, I do! But it's fairly likely that you don't know who she is.... so, let's fix that!  I discovered her in my latest daytime o ... Read on »
Tried and True Tuesday: BRRR to the RRRR! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health photo credit Winter has been pretty brutal for a large chunk of the US and keeping ourselves warm is difficult enough without worrying over the level of ... Read on »
Bee-Worthy Share: Thought of the Month by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health On our Facebook page, which you can join as an audience support member by clicking HERE  then clicking "like" there, we look forward to several regular occurrences: * ... Read on »
Community BUZZ: I Run for Matty by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Global Hydranencephaly Foundation was honored to be represented at this morning's Ocean Isle Beach Bridge Run for Food. Our bee-buddy Matty had the honor of cheering on hi ... Read on »
Fact-BUZZ Fiday: The Sickies by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Adults... if you are sick, please stay home! If your kids are sick, please keep them at home too! Germs are the one thing that we don't want to teach our little ... Read on »
Bee-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Lily Nichole West was born at 25 weeks on October 12, 2013. Her parents are Kristin & James West. The doctors diagnosed her Hydranencephaly before she was even bor ... Read on »