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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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Community BUZZ: I Run for Matty by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Global Hydranencephaly Foundation was honored to be represented at this morning's Ocean Isle Beach Bridge Run for Food. Our bee-buddy Matty had the honor of cheering on hi ... Read on »
Fact-BUZZ Fiday: The Sickies by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Adults... if you are sick, please stay home! If your kids are sick, please keep them at home too! Germs are the one thing that we don't want to teach our little ... Read on »
Bee-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Lily Nichole West was born at 25 weeks on October 12, 2013. Her parents are Kristin & James West. The doctors diagnosed her Hydranencephaly before she was even bor ... Read on »
Community Sunday: Resolution Volunteer by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health When Brayden was born, asi when most children with hydranencephaly are born, diagnosed, and given the long list of impossibilities; the least of your concerns is on beginn ... Read on »
Bee-Inspired: 10 Ingenious Inventions for People with Disabilities by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Why is technological research so incredibly important?  If nothing else, it works towards creating solutions for all of the problems faced by the individuals inventing ... Read on »
Fact-BUZZ Friday: Common, Costly & Critical by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Just the facts... Although the exact cause of hydranencephaly is unknown in most cases, generally the most likely cause is by vascular insult such as stroke or in ... Read on »
Nominations in THREE Categories! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Here's a little reminder of how AWESOME you all are!! Global Hydranencephaly Foundation has received nominations in three different categories at WEGO: the Health ... Read on »
Happy 2014! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health We all wish you a year full of health, hope, and endless amounts of reasons to "Believe in the Impossible!" Be sure to sign up for our monthly e-newsletters by fil ... Read on »
You've Got a Story to Share! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Bee-ography Submissions can be sent to Ali via email. This is simply a template to help guide you along the storytelling trail, feel free to share as much or as li ... Read on »
Bee Compassionate by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health ...always. "No one is born hating another person because of the color of his skin, or his background, or his religion. People must learn to hate, an ... Read on »
Toy-FILLED Tuesday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This is only a small portion of a great guide for differently-abled kids! And many kudos to Toys "R" Us for publishing this information to accommodate ALL kids (with notes ... Read on »
Meet the Bees Monday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health We met this sweet boy from Israel, another little bee-buddy with a ginormous smile, some time ago... you can read it HERE . Here's a little update through photos, thanks t ... Read on »
Toy-FULL Tuesday: Trick or Treat! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Trick or treating is a time honored tradition for most kids.  from Global Hydranencephaly Foundation Picking out a costume. Decorating the hous ... Read on »