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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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Toy-FULL Tuesday: A Fav by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I discovered this website a few months ago in my earliest Christmas shopping days. I love that it's divided in to categories of toys for accomodating limitations as well a ... Read on »
Bee-Inspired: Changing the Face of Hydranencephaly by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Maybe seems like a completely irrelevent quote for our foundation and it's mission.. but, sadly, it's perfectly fitting. Doctors rarely give a family a diagnosis of ... Read on »
Flashback Friday: Bee Inspired by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I may have shared this here before. It's one of my most favorite stories of inspiration on this journey I, as well as you, have and continue to travel on.  In 1985, w ... Read on »
Thankful Thursday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health "God gave you a gift of 86,400 seconds today. Have you used one to say, ‘Thank you?’ "– William Ward Just be thankful... big things, little things, material things, ... Read on »
BUZZ: Happy 11th Birthday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Remember, if you'd like us to celebrate your little bee's birthday via our blog... Contact Ali for details via Facebook or email (President@HydranencephalyFoundation,org) ... Read on »
Thankful Thursday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I don't think most people realize the value of a great support network. Having family, friends, and brothers/sisters by circumstance to lean on in both happy and sad times ... Read on »
BUZZ: Weekend Auction & Fundraiser by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our friends at "Inspired By Grace" are having their monthly auction until Sunday featuring hair bows, headbands, petti rompers, and more! Handmade, near my own hometown ... Read on »
Thankful Thursday: Our Volunteers by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Always recognizing those things to be thankful for... one is to thank those of you who participated in yesterday's text to donate event with Wish Upon ... Read on »
Toy-FULL Tuesday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health A little help for those who are still shopping, from our friends at Friendship Circle Blog. And don't forget to sign up to donate a portion of every online purchase you make ... Read on »
BUZZ: Hot Off the Press! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Check out our latest edition of the Bee's Buzz.... our quarterly newsletter! Also packed to the brim with tons of information on the going's on of our foundation and our l ... Read on »
Manic Monday: Out and About by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Getting out and about with kids who require extra equipment is not an easy task, but most parents will happily go the extra mile to include their children in even the most ... Read on »
Holiday Shopping & Giving Back by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Want an easy, effortless, and FREE way to give back this holiday season (and after, for that matter)? Sign up with iGive.com and do your shopping at the 1000's of stor ... Read on »
Flashback Friday: CNN & Deepak Chopra today by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Flash back to even 20 years ago and you will hear of babies diagnosed with rare, debilitating neurological conditions being institutionalized and given up on far more ofte ... Read on »
Bee Aware: Nap Nanny Product Alert! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I know many special needs parents, as well as parents of typically developing little ones, who have this product for their child. There have been 5 reported infant dea ... Read on »
Toy-FULL Tuesday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Tuesdays we try and feature a great product that our little ones with extra special necessities can benefit from... while not ordinary toys, in a traditional sense when ta ... Read on »
December 3: International Day of People with Disability by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This year is the 20th anniversary of International Day of People with Disability (IDPwD), a United Nations sanctioned day that aims to promote an understanding of pe ... Read on »