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Ali Patient Expert

Norfolk, Virginia
Website: http://www.hydranencephalyfoundation.org
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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Word-FULL Wednesday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Check out our Facebook page to catch all of our amazing bee-isms (quotes we love oftentimes featuring our own little bees): http://www.facebook.com/globalHYDRANENCEPHA ... Read on »
Toy-FULL Tuesday: Squooshi by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Ok, well those of you who have been following us for some time know that our Toy-FULL Tuesday posts are all about toys... sometimes toys, sometimes therapy ideas, sometime ... Read on »
"Meet the Bees" Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Read on »
Bee-Inspired: Incompatible? No by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Just when you feel like there is no hope... remember to always "Believe in the Impossible!" "What I find amazing to this day is how the brain can deal with somethin ... Read on »
Bee-Inspired: send out your ray of sunshine by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health The Sunshine Song by Jason Mraz Sometimes the sun shines on other people's houses and not minesomedays the clouds paint the sky in a waythat takes away my summ ... Read on »
Parenting Resource: Babysitting by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our hydran-parents face many complicated tasks that most "ordinary" parents wouldn't think twice over. Hiring the neighbor girl to care for the kids for a date-night? Th ... Read on »
Thankful Thursday: Just for this Once by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our hydranencephaly community of families has been wading the dreaded season of colds, flus, and respiratory infections. For our children, who are already teeterin ... Read on »
Wordless Wednesday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Read on »
Toy-FULL Tuesday: Noodling by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I don't know how the weather is where you are, but here it is a little chilly to be thinking about pool items. Nonetheless, the day after Valentines day the pool supplies ... Read on »
Introducing "Meet the Bees" Mondays by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our mission has always and will always be centered around the lives of those with hydranencephaly. We love to bring their stories to you each Monday through "Bee-Ographi ... Read on »
BUZZ: Happy Heavenly Birthday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Read on »
Wordless Wednesday: Feeding Tube Awareness Week! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Read on »
Wordless Wednesday: Just the Bees! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Read on »
Toy-FULL Tuesday: Junk! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health That's right, my title says it... tons and tons of JUNK! You can put it all to great use to make an amazing sensory wall or curtain for your child: which in turn helps ... Read on »
Bee-ography: The Beginning by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health One of our bee-aunties wrote this for a class and it gives such a great insight in to the lives of the families we represent... thanks Krista, for letting us share your ... Read on »
Toy-FULL Tuesday: Bottle Holder by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our little bees aren't as independent as most kids... and feeding/drinking becomes a huge concern for many reasons. Some of our kids try their darndest, showing honorable ... Read on »
Bee-worthy Share: Siblings by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I'm sure I've written here about this before, it's always been a huge concern of mine. Brayden has two older sisters. They were 3 and 6 years old when he was born and ... Read on »
Thankful Thursday: Make a life! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This was shared by one of our hydran-angel families, who also happens to be an amazing family with 12 children (and counting). You can follow them along on their journey ... Read on »
Wordless Wednesday: Buzzing Beauty by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Read on »
Toy-FULL Tuesday: Got Wheels? by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Most of our little bees grow in to a set of sweet wheels at one point or another. The advantage of a wheelchair or adapted stroller is that it offers the support that ... Read on »
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