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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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You've Got a Story to Share! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Bee-ography Submissions can be sent to Ali via email. This is simply a template to help guide you along the storytelling trail, feel free to share as much or as li ... Read on »
Bee Compassionate by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health ...always. "No one is born hating another person because of the color of his skin, or his background, or his religion. People must learn to hate, an ... Read on »
Toy-FILLED Tuesday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This is only a small portion of a great guide for differently-abled kids! And many kudos to Toys "R" Us for publishing this information to accommodate ALL kids (with notes ... Read on »
Meet the Bees Monday! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health We met this sweet boy from Israel, another little bee-buddy with a ginormous smile, some time ago... you can read it HERE . Here's a little update through photos, thanks t ... Read on »
Toy-FULL Tuesday: Trick or Treat! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Trick or treating is a time honored tradition for most kids.  from Global Hydranencephaly Foundation Picking out a costume. Decorating the hous ... Read on »
Fact-Filled Friday: Burnt by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health photo courtesy of Oprah.com Burn out is a legitimate state of complete and utter emotional exhaustion... stack the medical complexities of children w ... Read on »
Wordless Wednesday: Trick or Treat! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Later this month I will be sharing some other resources to make celebrating Halloween with your medically complex child a bit easier, but for today I am sharing this f ... Read on »
Meet the Bees Monday: Matty by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Meet our new Bee-Buddy: almost 6-month old Matthew, via a beautiful video his sister allowed us to share with you all! Read on »
Community Sunday: Who is In Your Community? by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health "Objects we ardently pursue bring little happiness when gained; most of our pleasures come from unexpected sources." ~Herbert Spencer  I often reach out to those ou ... Read on »
Thought-FILLED Thursday: Parenting with a Plan? by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health October's thought of the  month from our friends at You and Your Disabled Child , on Facebook:  "There is no right and wrong way to raise a child with special ... Read on »
Fact-Filled Friday: Doctors are not Experts by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health While those in our own family support community understand the fact that those in the medical community are merely "practicing" medicine, far too many individuals ... Read on »
World Cerebral Palsy Awareness Day by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health What is cerebral palsy? There are 17 million people across the world living with cerebral palsy (CP). Another 350 million people are closely connected to a child ... Read on »
Bee-Worthy Share: I Know You! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Please never doubt the value of a network of support from those venturing on the journey you are on; whether ahead, behind, or beside you. Those are the individuals who yo ... Read on »