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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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Tried and True Tuesday: "Slow Code" by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I have to admit, when it comes to all things hydranencephaly I always focus on the rainbows and butter... Eh, bumblebees.  Although I've faced the dark, scary horrors ... Read on »
Buzz-worthy Share! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health I love stumbling upon links to our efforts in unlikely places.  A lot has happened since November 23, 2012 when this post was made. I faintly remember being in touch wi ... Read on »
Meet the Bees Monday: Brantley by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health If you'd like to share your child's story with those who are following our mission, you can do so by contacting me at President@HydranencephalyFoundation.org Read on »
Bee-ography Monday: Sophia by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This week's Bee-ography comes from bee-beauty Sophia's family in Chile. I always try to share each journey just as it is given, so please bare with the difficult ... Read on »
A Bee-Keeper's Special: Happy Father's Day! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health In 2013, several of our families were in attendance at the first ever Hydranencephaly Conference in Allen, Texas. It just so happened to wrap up on Father's Day... and thi ... Read on »
Tried and True Tuesday: To Blog or Not to Blog by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Did you know that this entire mission was inspired into existence by a small group of kids across the globe who have never spoken a word and their parents whom most ... Read on »
Bee-ography Monday: Keelin Rose by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This is Keelin Rose; daughter to the proudest parents ever and sister to Aaron & Clodagh. Born on Tuesday March 11, 2014 then grew her angel wings and flew to heaven on ... Read on »
National Best Friends Day by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health "What greater thing is there for human souls than to feel that they are joined for life – to be with each other in silent unspeakable memories."  ~Geor ... Read on »
Tattoo Thursday... a day later by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health June 5th is recognized as Tattoo Tuesday & I am so very bummed that the day got away from me before I finished my original post. I almost scrapped the whole thing, but we ... Read on »
Tried & True Tuesday: Prosthetics by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Quickly, I'd like to first recognize Dr. Charles Drew Day... today is the birthdate of the physician, surgeon, and medical researcher who developed a system for storin ... Read on »
Meet the Bees Monday: Awareness Style by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health What's "awareness style"? Just a little term I threw on the end of title really, in keeping with the awareness raising all month long. So, without further adieu.... ... Read on »
BEE-aware: Global Day of Parents by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Observed the 1st of every June, the Global Day of Parents was proclaimed by the United Nations General Assembly in 2012 in order to honor parents throughout the world and ... Read on »
Happy June! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Happy June... Better yet... Happy Hydranencephaly Awareness Month!! Expect to be hearing more from us this month than ever before... not only have we recently a ... Read on »
Lives Worth Living by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This is Josie, mommy to a little angel Billie-Rose who was given a diagnosis of hydranencephaly before birth. Please consider contributing to the efforts of "Lives Worth L ... Read on »
Flashback Friday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Bee-beauty Bella Bee-Buddy Ethan Bee-Angel Krystal Ariatne Read on »
Tried & True Tuesday: GoTo Seat by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Here is a GREAT review on an amazing product, ideal for our little bees who need a little extra "ooph" in the area of trunk support!  Check out the GoTo Seat from Fir ... Read on »