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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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"Almost" Wordless Wednesday: Awareness Merchandise by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This, and many other hand-crafted designs, available at Sonyarita Designs on Etsy; with 50% of every sale being donated to Global Hydranencephaly Foundation . ... Read on »
"Bee"-MOMMY-ography by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Alright, I was in a funk... it happens. This journey, regardless of how optimistic you try to be, just sucks the happiness out of you sometimes. But that's the joy of hope ... Read on »
"Bee"-ography by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This week's "bee"-ography comes to us all the way from Israel, from another amazingly wonderful adoptive mommy to Natan Shai, Hannah: Our story started back in 2006 ... Read on »
"Bee"-ography by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Though this is not the story of one of our own little bees, who are living with hydranencephaly, I feel that Tim Krahling's story is one worthy of sharing... an honorary " ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health After a very tumultuously, nerve-wracking early surprise pregnancy, full of unknowns and impossibilities (not the usual shock and excitement), a 23-week old ultrasound c ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our first bee-ography of the new year comes from our little bee Hayden's, daddy Jason. Thanks for sharing her with us: Well Whitney was 5 alm ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Addison Michelle Gibson was born October 17, 2006 after being diagnosed in utero with Hydranencephaly. It was a fight to even get the Doctors to understand that d ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This week's Bee-ography, though a day late, comes from Mason's mommy Sue.  Mason Josiah Quaid December 5, 2001 7lbs 2 oz, 20 inches long ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health It's everyone's favorite day of the week, with another installment of our "bee"-ography series. This week's story comes from our bee-angel Sarah's grandmother, Peg: ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health It's Monday, time for a new edition of our "bee"-ography series which brings the story of a new little one with a diagnosis of hydranencephaly each and every week. This we ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Ok, ok... it's been a couple of weeks since I have found the time to post. But I've made a commitment today to post every single day, even if it's only a photo or a quote! ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Ok, well this isn't necessarily a "bee"-ography, it's actually about a family we have not reached yet but that I wanted to share with you all. Perhaps you know them, or ar ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health   Christina Ann Mason was born on December 26, 2000. She barely made it in as a millennium baby! Her birthmother was planning on giving her up for adoption and a fami ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This weeks "Bee"-ography is about Bee ^Joshua^. It was written by his mom, ^Diane^. There is a special addition about ^Diane^ written by Bee Chrissy's mom, Angela. ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Ethan was born to his birth mother via C-section. They found he possibly had hydran at an ultrasound right before his birth. His apgars were very poor and they did not expec ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Meet Phillip! He is 16 years old  from Northern Ireland. His mom, Avril tells his story. Because we had a son, Mark who was microcephaly we went for genetic co ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health This weeks "Bee"-ography is told to you by our little Bee, Damien (with a little help from mommy, Jessica.) Damien Zuchowski's Story Hi my name is Damien Xavier Z ... Read on »
"Bee"-ography Monday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health We are excited to bring you another life story written by the parent/caregiver of one of our amazing bees! Noah was born almost two weeks past his due date (26th Ju ... Read on »
"Bee"-ography Mondays by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health It's that time again, another life story written by the parent/caregiver of another little bee. Be sure to check back every Monday for a new "Bee"-graphy & new daily p ... Read on »
"Bee"-ography Mondays by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Gabby was born June 24, 2009. Her diagnosis of Hydranencephaly came three days after her birth when doctors began noticing tremors and her temperature wouldn' ... Read on »