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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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Toy-FULL Tuesday: pulse oximeter by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health (Note that this is not a sponsored review, simply a post to share an item one of the members of our family support group has discovered to work well. The information provi ... Read on »
Community Sundays: Fundraising by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Sundays here on the blog, we will now be featuring ways you can bring awareness to your own communities through fundraisers and awareness campaigns. Of course, if there is ... Read on »
Final Days: Silent Auction by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our online silent auction featuring SO many great items is wrapping up in just 4 more days... so be sure to get your bids in on your favorites!! Featuring the many items ... Read on »
Thankful Thursday: Teacher Appreciation Week! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health "A teacher affects eternity;  he can never tell where his influence stops."   ~Henry Adams Read on »
Wordless Wednesday by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health "While there is perhaps a province in which the photograph can tell us nothing more than what we see with our own eyes, there is another in which it proves to us how lit ... Read on »
Thought-Filled Thursday: Volunteer Appreciation Week by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health B is for Brayden, Believe in the Impossibilities, and Bumblebee "Aerodynamically, the bumble be shouldn't be able to fly, but the bumble bee doesn't know it so it ... Read on »
Fact-BUZZ Friday; Emotions by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Various parts of the brain work together to control emotion.. not only the feelings you feel, but the response to those feelings as well. Let me start by reminding y ... Read on »
Thought-filled Thursday: A Parent's Fight by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Sure, the following article isn't about hydranencephaly but another devastating diagnosis called SMA... the article is about what's important and why it is. The article ... Read on »
Toy-FULL Tuesday: Jingle Bells... all year round! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Today's post comes from hydran-mommy to Chrissy AND Sophie, and other amazing and wonderful kids, who also happens to be the treasurer & marketing director for GHF. (she's ... Read on »
Bee-Worthy Share: Perfectly Perfect in Every Way by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health The following post comes from angel bee-beauty Ailish's mom, Tricia. I'm sure you all have seen the photo circulated around the web, as I believe this to be about the thir ... Read on »
Fact-Buzz Friday: PVS by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health What is PVS?  Persistent Vegetative State is defined as "a clinical condition of unawareness of self and environment, in which the patient breathes spontaneousl ... Read on »
Toy-FULL Tuesday: Get out and ROLL! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health The birds are chirping, the grass is looking greener, and the trees are a little less naked... spring is in the air! And getting outdoors and enjoying some fresh air i ... Read on »
Toy-FULL Tuesday: Molly & Milly & Bennett too! by Ali Patient ExpertFacebook Posted in: Blog Posts in Children's Health Our friends at Molly & Milly's Zoo-cephaly: Globe Trotting Awareness Animals partnered with Global Hydranencephaly Foundation to bring to you our very own traveling Bennet ... Read on »