Ali's Posts - Wellsphere

Thankful Thursday: Littlest One by Ali Patient Expert

Posted in: Blog Posts in Children's Health Too often parents of children with hydranencephaly, or any life-limiting, medically complex condition, find themselves being pitied and felt sorry for. In actuality, the ... Read on »

Wordless Wednesday: Fly High by Ali Patient Expert

Posted in: Blog Posts in Children's Health Fly high new hydran-angels... you are forever in our hearts! ^Kayce^ ^Mya^ Read on »

Quotable Quote: Bee-lieve by Ali Patient Expert

Posted in: Blog Posts in Children's Health Read on »

Thoughtful Thursday by Ali Patient Expert

Posted in: Blog Posts in Children's Health The Centers for Disease Control (CDC) reports that one in 33 babies born in the United States will be born with a birth defect... this number is not inclusive of those w ... Read on »

Bee-worthy Share: Best Job in the World by Ali Patient Expert

Posted in: Blog Posts in Children's Health Not many of us mommies ever grew up dreaming of becoming a mother to a child with complex medical necessities... though I did have a thought one day that since I could not ... Read on »

Bee BUZZ: In the News by Ali Patient Expert

Posted in: Blog Posts in Children's Health We first shared about sweet little Natan Shai in our Bee-ography series in August 2011, read his story HERE if you missed it. Back in January 2012, his amazing mo ... Read on »

Happy Mothers Day by Ali Patient Expert

Posted in: Blog Posts in Children's Health video by Erica Hess, GHF Media Development Read on »

Mothers Day: What I Would Say by Ali Patient Expert

Posted in: Blog Posts in Children's Health Being given a diagnosis of hydranencephaly for your child is no less than one of the hardest bits of news you will ever hear... The fact that it is delivered in such a hor ... Read on »

Flashback Friday: Mothers Day by Ali Patient Expert

Posted in: Blog Posts in Children's Health From Small Portion of a Life's Journey, Alicia Harper, Mothers Day 2011 "There is no such thing in anyone's life as an unimportant day." ~Alexander Woollcot ... Read on »

Thoughtful Thursday: Those BLUE Spots by Ali Patient Expert

Posted in: Blog Posts in Children's Health I know you've seen these spots, everywhere you go... these beautifully painted parking spots, generally in blue but sometimes even white, that are for those with registe ... Read on »

Wordless Wednesday: Mommy & Bee by Ali Patient Expert

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BUZZ: In All Honesty... by Ali Patient Expert

Posted in: Blog Posts in Children's Health If only it were so easy... Via our Family-to-Family Resource Network , the most active support system on the web for families faced with a diagnosis of hydra ... Read on »

International Bereaved Mothers Day by Ali Patient Expert

Posted in: Blog Posts in Children's Health What Makes a Mother I closed my eyes and thought of you, And prayed to God today. I asked what makes a Mother, And I know I heard him say: A mot ... Read on »

Shareworthy: Bereaved Mothers by Ali Patient Expert

Posted in: Blog Posts in Children's Health Tomorrow, a week before many mothers will celebrate Mothers Day in the US, is recognized in the lives of far too many... as International Bereaved Mothers Day. Never in ... Read on »

Flashback Friday: Regular vs Special Needs Moms by Ali Patient Expert

Posted in: Blog Posts in Children's Health Originally Posted: Small Portion of a Life's Journey, May 2010 By Alicia Harper Since Brayden came in to my life a little over 22 months ago, hydranencephaly ... Read on »

Wordless Wednesday: Mommy & "Bee" by Ali Patient Expert

Posted in: Blog Posts in Children's Health Read on »

All About Mom by Ali Patient Expert

Posted in: Blog Posts in Children's Health This month, not just one day and even more than very other day, we are celebrating all things "mom" While all moms are pretty special, I wholeheartedly believe that it t ... Read on »

Bee-ography Monday by Ali Patient Expert

Posted in: Blog Posts in Children's Health This week's bee-ography comes from hydran-mommy to the beautiful Brianna, Barbara: In 2000 I became pregnant at the age of sixteen and little did I know ... Read on »

Contest: Name our BEE! by Ali Patient Expert

Posted in: Blog Posts in Children's Health Read on »

BUZZ: We Need YOUR Help!! by Ali Patient Expert

Posted in: Blog Posts in Children's Health Will you help Global Hydranencephaly Foundation with this endeavor, to be featured on the helmet of Nascar great Jimmie Johnson during an upcoming Spring Cup race? Whether ... Read on »

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