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Ali Patient Expert

Norfolk, Virginia
Mommy, Navy wife & founder of Global Hydranencephaly Foundation, a nonprofit organization working to change the lives of families who have been touched by a diagnosis of this rare neurological condition for their own child.
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30 Days to BEE Hydranencephaly Aware - Say CHEESE!

Day 15 of our #30daystoBEEhydranencephalyaware series - in honor of "Smile Power" day, it's all about...

30 Days to BEE Hydranencephaly Aware - Happy Birthday!

Day 14 of our #30daystoBEEhydranencephalyaware series - it's our BIRTHDAY! On this day, in 2011, Brayden Alexander Global...

30 Days to BEE Hydranencephaly Aware - The Big Event

Day 13 in our #30daystoBEEhydranencephalyaware series - a reminder of our big global-wide event, coming up in just 2 short weeks (it has really...

30 Days to BEE Hydranencephaly Aware - Superman

Day 12 of our #30daystoBEEhydranencephalyaware series - we get to celebrate our own group of...

30 Days to BEE Hydranencephaly Aware: Stillbirths, Statistics, and Surveys

Day 11 of our #30daystoBEEhydranencephalyaware series and we are going back to the topic of statistics Those statistics we mentioned...

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