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akontarinis

I am a 40 year old Stage 4 Kidney Cancer warrior. My blog blends updated medical information about cancer and new treatments and my personal experience on this journey and insights on how I am dealing with victories and setbacks.
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The day… by akontarinis Posted in: Blog Posts in Cancer R marks the spot The anesthesiologists discussing how to make my brain hang upside down I' ll take the Larry Fine, please My arterial line; typing ... Read on »
They’re coming to take me away… by akontarinis Posted in: Blog Posts in Cancer The morning view: snow and ice in Boston One last post before the knife Well, this is it. They come and grab me in a few minutes. No sleep, no blood left, ... Read on »
A visit from Dr. Day (and a correction) by akontarinis Posted in: Blog Posts in Cancer So my dear surgeon, Dr. Arthur Day came by tonight  to visit me on his rounds and go over the details of the surgery for tomorrow morning. He answered all our questions ... Read on »
A cantankerous New Yorker in exile: Raising the positive bar by akontarinis Posted in: Blog Posts in Cancer Jimmy Breslin Let me start off by saying that as a born and bred New Yorker, one tends to grow up with a certain sense of cautiousness and negativity about life d ... Read on »
Getting weaned off the steroids, thankfully! by akontarinis Posted in: Blog Posts in Cancer The new me and the old me - not sure who is who anymore. Let me start by giving you some quotes from my mood swing moments today here at home, thanks to the stero ... Read on »
Striking the perfect balance by akontarinis Posted in: Blog Posts in Cancer McQueen Gandhi Ok, so I know that meditation and positive visualization will be beneficial and necessary in my beating this thing once and for all. It’ll b ... Read on »
So, what’s next? by akontarinis Posted in: Blog Posts in Cancer I get to go home today, which after being in here since January 4th and being mentally and physically ready to leave since the 8th, is very welcome. I have a few hou ... Read on »
INR = 2.5!!! by akontarinis Posted in: Blog Posts in Cancer Which means this warrior is going home!!! Thank you, Coumadin. Which means this warrior is going home!!! Thank you, Coumadin. Read on »
Thank goodness Obama is closing Guantanamo by akontarinis Posted in: Blog Posts in Cancer Dr. Day’s PA Nicki came by today to give me a normal haircut. I actually really like it. Nicki ravaging my head Half way done Raising eyebrows at the ... Read on »
The view from the top by akontarinis Posted in: Blog Posts in Cancer Here is the view this morning. Its all healed and I will get to actually shower my hair today, thankfully. And oh yeah, I  AM STILL HERE!!! ARGH!! The problem is tha ... Read on »
The kids visit again… by akontarinis Posted in: Blog Posts in Cancer Tess riding the rails around the hall Pearl bonding with daddy Jack and Tess getting along for about 2 minutes Tess riding the rails around ... Read on »
A question and an answer about HDIL2 with Dr. Janice Dutcher (!) by akontarinis Posted in: Blog Posts in Cancer Dr. Janice Dutcher After my run-in with my oncologist and his new sour attitude on the prospects of HDIL2 as a treatment for me I took it upon myself to do as muc ... Read on »
OK, so what exactly is High Dose Interleukin 2 immunotherapy? by akontarinis Posted in: Blog Posts in Cancer For the family and friends who have been asking about my next phase of therapy, HDIL2 at Beth Israel Deaconess in Boston, here is some good information about what the pr ... Read on »
Pics of the day by akontarinis Posted in: Blog Posts in Cancer 1.8.09: First day out of bed 1.8.09: The view 1.8.09: First day out of bed 1.8.09: The view Read on »
I’m goin’ on, on, on, to the $99,000 Answer!! by akontarinis Posted in: Blog Posts in Cancer One of the greatest television shows of all time, The Honeymooners, provides a perfect metaphor for a meeting I had with my oncologist the other night. He paid me a visi ... Read on »
First day out, for real by akontarinis Posted in: Blog Posts in Cancer Harvard University Natural History Museum Today was the first time I went on a real, full-on outing since the surgery. We drove down to Cambridge for the day and ... Read on »
Sinus infection by akontarinis Posted in: Blog Posts in Cancer One of the things that happens when you spend 10 days in the hospital is that you will inevitably get an infection of some sort while you are there. The day of my surger ... Read on »
Life without stitches by akontarinis Posted in: Blog Posts in Cancer Today at the Brigham. Today at the Brigham. Read on »
A big day by akontarinis Posted in: Blog Posts in Cancer When I was 12 or 13 my parents  moved the family from Washington Heights, an ethnically mixed, working class neighborhood in Manhattan’s way Upper West Side (190th S ... Read on »
Book review and notes:Zen Mind, Beginner’s Mind by akontarinis Posted in: Blog Posts in Cancer I read this book by Zen master Shunryu Suzuki, a Buddhist who moved to the States in 1959 after getting turned on by the zen of the American mind. This is a collection ... Read on »