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akontarinis

I am a 40 year old Stage 4 Kidney Cancer warrior. My blog blends updated medical information about cancer and new treatments and my personal experience on this journey and insights on how I am dealing with victories and setbacks.
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The title of the blog has changed by akontarinis Posted in: Blog Posts in Cancer When I first got my diagnosis in 2008, I went into battle mode. Raised in NYC, battle has been in me since I was a kid. I had to fight my way through life; kids, sc ... Read on »
The Anticancer Research Program at M.D. Anderson Cancer Center by akontarinis Posted in: Blog Posts in Cancer This is a major story where a traditional center of cancer excellence will incorporate integrative medicine and patient empowerment as part of their treatment opti ... Read on »
31,000 unique visitors! by akontarinis Posted in: Blog Posts in Cancer I started writing about and documenting my entire cancer journey first for me, and then so that my family and friends could keep up with everything we have been goi ... Read on »
Meditation retreat is in my future by akontarinis Posted in: Blog Posts in Cancer I have been spending quite a bit of time recently listening to meditation techniques here at that help me deal with my cancer in a positive, rational way. I ... Read on »
Meditation for healing and relaxation by akontarinis Posted in: Blog Posts in Cancer A doctor of mine gave me this CD of Peggy Huddleston’s a couple of years ago to help me relax and positively visual healing throughout my body. Huddleston is a therapist ... Read on »
More meditation for healing by akontarinis Posted in: Blog Posts in Cancer I downloaded this MP3 from Amazon a couple of days ago. Gwen Randall-Young is another therapist who releases these meditation CDs for cancer patients. Her voice is very s ... Read on »
What I am thankful for… by akontarinis Posted in: Blog Posts in Cancer Too many times in this journey I focus on the science of my cancer, my treatments, the effect it has had on me and my family, my friends. I vent my frustrations with medic ... Read on »
Saw the MDX-1106 proof today by akontarinis Posted in: Blog Posts in Cancer I went in for my bi-weekly MDX-1106 infusion today at BIDMC . I had the usual litany of tests beforehand: Blood, urinary, EKG, examination by the nursing staff and then a ... Read on »
Before and after Cyberknife by akontarinis Posted in: Blog Posts in Cancer Here is my Julius Caesar bust getting fitted for a hot mask that would hold me in place during the 2 hour procedure. After the mask took the mold ... Read on »
It’s the small victories by akontarinis Posted in: Blog Posts in Cancer The docs called me from Beth Israel this morning to tell me that my CT scan has shown even more reduction in the remaining tumors in my lungs and some of the smaller ones ... Read on »
A brief respite, or how I am trying to keep sane by akontarinis Posted in: Blog Posts in Cancer Well, I enjoyed about two months of peace and quiet until two Saturdays ago. I woke up at 6am and my eyes were shifting violently left to right out of control. I woke Meli ... Read on »
The tsunami that never happened by akontarinis Posted in: Blog Posts in Cancer After much ballyhoo and worry, I had no reaction to the MDX-1106 yesterday. They pumped me full of antihistamines beforehand, which made me loopy, slowed the drip, and eve ... Read on »
Another MDX-1106 infusion by akontarinis Posted in: Blog Posts in Cancer I am in Boston again today for another round of MDX-1106. The team is premedicating me today with Pepcid, Benadryl, and Hydrocortisone via IV all before my infusion. The i ... Read on »
The official CT torso report by akontarinis Posted in: Blog Posts in Cancer Dr. Cho emailed me the official CT scan report of my torso. The results were better than I expected and the good news continues. I won’t post the whole thing since ... Read on »
More good news and a severe allergic reaction by akontarinis Posted in: Blog Posts in Cancer Yesterday was infusion day and the start of my third cycle of MDX-1106 in Boston. The kids are off from school this week so we took them with us and they spent the ... Read on »
The official head MRI report by akontarinis Posted in: Blog Posts in Cancer I was debating whether or not to post this simply because it’s technical and too detailed in spots. But then I thought I should post it in case anyone is interested ... Read on »
Starting to say goodbye to an old frienemy by akontarinis Posted in: Blog Posts in Cancer Decadron The long, slow process of getting off this insane steroid has begun. I went to a half dosage this week and I begin taking only 1mg a day staring ... Read on »
Dare I say it? More great news…shhhhh! by akontarinis Posted in: Blog Posts in Cancer Yesterday was exhausting. We left the house at 8, left the girls behind with the sitter, dropped my son off at school, left Exeter and got to BIDMC for my 10am ... Read on »
I was magnanimous (for a change) by akontarinis Posted in: Blog Posts in Cancer Sorry it’s been a while but life got in the way. We are moved in to the new house and we love it. What we aren’t crazy about its our quarter-mile, 35 de ... Read on »
A full day on Monday in Boston by akontarinis Posted in: Blog Posts in Cancer Fellow travelers, I go into Beth Israel Deaconess on Monday for a full day of tests, infusions, visits, and am anxious about hearing some more good news. We le ... Read on »