Health knowledge made personal

akontarinis

I am a 40 year old Stage 4 Kidney Cancer warrior. My blog blends updated medical information about cancer and new treatments and my personal experience on this journey and insights on how I am dealing with victories and setbacks.
› Share page:

Posts

Sort by: Most recent | Name
“Daddy, how is your brain?” by akontarinis Posted in: Blog Posts in Cancer Daddy Warbucks with the kids This is the question that Tess asks me without fail every morning. My answer is always: “As long as you can’t see it, it’s fine honey ... Read on »
11pm dose skipped by akontarinis Posted in: Blog Posts in Cancer Thanks again to an elevated heart rate (145bpm) the team decided to skip my 11pm dose just to be safe. Dr. Cho thinks my heart is fine and strong but wants to be super c ... Read on »
27 by akontarinis Posted in: Blog Posts in Cancer ‘Nuff said Posted in Baseball Read on »
27 by akontarinis Posted in: Blog Posts in Cancer ‘Nuff said ‘Nuff said Read on »
31,000 unique visitors! by akontarinis Posted in: Blog Posts in Cancer I started writing about and documenting my entire cancer journey first for me, and then so that my family and friends could keep up with everything we have been goi ... Read on »
A big day by akontarinis Posted in: Blog Posts in Cancer When I was 12 or 13 my parents  moved the family from Washington Heights, an ethnically mixed, working class neighborhood in Manhattan’s way Upper West Side (190th S ... Read on »
A bobcat, the Catskill Mountains, and my first cancer dream (I think) by akontarinis Posted in: Blog Posts in Cancer The view from our town lake in Halcottsville, NY I woke up from a scary dream this morning nice and early. The sensation was nothing unusual: Heart thumping, a fe ... Read on »
A brief respite, or how I am trying to keep sane by akontarinis Posted in: Blog Posts in Cancer Well, I enjoyed about two months of peace and quiet until two Saturdays ago. I woke up at 6am and my eyes were shifting violently left to right out of control. I woke Meli ... Read on »
A cancer journey dream… by akontarinis Posted in: Blog Posts in Cancer Just before I woke up this morning I was knee deep in a dream in which Melissa and I were boarding an Amtrak train with an Asian male friend and we were headed to a l ... Read on »
A cancer journey dream… by akontarinis Posted in: Blog Posts in Cancer Just before I woke up this morning I was knee deep in a dream in which Melissa and I were boarding an Amtrak train with an Asian male friend and we were headed to a l ... Read on »
A cantankerous New Yorker in exile: Raising the positive bar by akontarinis Posted in: Blog Posts in Cancer Jimmy Breslin Let me start off by saying that as a born and bred New Yorker, one tends to grow up with a certain sense of cautiousness and negativity about life d ... Read on »
A full day on Monday in Boston by akontarinis Posted in: Blog Posts in Cancer Fellow travelers, I go into Beth Israel Deaconess on Monday for a full day of tests, infusions, visits, and am anxious about hearing some more good news. We le ... Read on »
A little more on Deepak Chopra by akontarinis Posted in: Blog Posts in Cancer I had mentioned in an earlier post that my friend Shaun T suggested last year that I give Deepak Chopra a try in my approach mentally with cancer. I tried. It was t ... Read on »
A news story followup by akontarinis Posted in: Blog Posts in Cancer FoxNews reporter Josh Miller called me a couple of days ago to get my reaction to the shuttering of Taylor, Bean, and Whitaker. Josh is the guy who did the story on us o ... Read on »
A news story followup by akontarinis Posted in: Blog Posts in Cancer FoxNews reporter Josh Miller called me a couple of days ago to get my reaction to the shuttering of Taylor, Bean, and Whitaker. Josh is the guy who did the story on us o ... Read on »
A question and an answer about HDIL2 with Dr. Janice Dutcher (!) by akontarinis Posted in: Blog Posts in Cancer Dr. Janice Dutcher After my run-in with my oncologist and his new sour attitude on the prospects of HDIL2 as a treatment for me I took it upon myself to do as muc ... Read on »
A visit from Dr. Day (and a correction) by akontarinis Posted in: Blog Posts in Cancer So my dear surgeon, Dr. Arthur Day came by tonight  to visit me on his rounds and go over the details of the surgery for tomorrow morning. He answered all our questions ... Read on »
Ahhh, the bruising! by akontarinis Posted in: Blog Posts in Cancer One of the wonderful side effects of the anti-seizure medication is that my body has become one big, giant, ugly bruise. You can see here on my arm that all these bruis ... Read on »
An inspirational guy by akontarinis Posted in: Blog Posts in Cancer I know that for most of us Lance Armstrong is the cycling dude who beat metastatic cancer and has retooled his life in very inspirational ways. He has not been a centra ... Read on »
And now for some good news, good news, and good news by akontarinis Posted in: Blog Posts in Cancer April Brain vs May Brain I am officially a ‘fat man’. Don’t shed a tear, it’s true. Thanks to the Decadron I had to use a special MRI machine at BIDMC yeste ... Read on »