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akontarinis

I am a 40 year old Stage 4 Kidney Cancer warrior. My blog blends updated medical information about cancer and new treatments and my personal experience on this journey and insights on how I am dealing with victories and setbacks.
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Great news today! by akontarinis Posted in: Blog Posts in Cancer I’ll give more details with pics later but for now, we left the hospital knowing that whatever combination of defense the team and I are conducting again my cancer has bee ... Read on »
Great news today! by akontarinis Posted in: Blog Posts in Cancer I’ll give more details with pics later but for now, we left the hospital knowing that whatever combination of defense the team and I are conducting again my cancer ha ... Read on »
Big breakthrough today by akontarinis Posted in: Blog Posts in Cancer Our amazing friend Laurie gave us a 3 hour break Saturday afternoon. It was great fun to be alone and do what we wanted. We changed the oil, ran errands, and spent time al ... Read on »
Big breakthrough today by akontarinis Posted in: Blog Posts in Cancer Our amazing friend Laurie gave us a 3 hour break Saturday afternoon. It was great fun to be alone and do what we wanted. We changed the oil, ran errands, and spent ti ... Read on »
What I did today by akontarinis Posted in: Blog Posts in Cancer Why write such mundane stuff, you ask? Well, partially to practice writing once again. A couple of weeks ago I would not have been able to get this far without a doze ... Read on »
What I did today by akontarinis Posted in: Blog Posts in Cancer Why write such mundane stuff, you ask? Well, partially to practice writing once again. A couple of weeks ago I would not have been able to get this far without a do ... Read on »
Total visits: 40,050 by akontarinis Posted in: Blog Posts in Cancer Another landmark! Thank you for all the visits, supportive words, positive visualization, and all around kindness. This all would have been a lot harder on me and my ... Read on »
Total visits: 40,050 by akontarinis Posted in: Blog Posts in Cancer Another landmark! Thank you for all the visits, supportive words, positive visualization, and all around kindness. This all would have been a lot harder on me and m ... Read on »
Baby steps? by akontarinis Posted in: Blog Posts in Cancer The Decadron is keeping all my large muscles in a state of rubberiness. My legs tends to buckle, my arms are weak. But with each day I am getting stronger and stronge ... Read on »
Baby steps? by akontarinis Posted in: Blog Posts in Cancer The Decadron is keeping all my large muscles in a state of rubberiness. My legs tends to buckle, my arms are weak. But with each day I am getting stronger and stron ... Read on »
Avastin: Day 1 of treatment by akontarinis Posted in: Blog Posts in Cancer So I woke up on the couch last Friday afternoon with wet pants and knowing where I was or what had happened. I was totally in a fog. I got up, walked around, found my ... Read on »
Avastin: Day 1 of treatment by akontarinis Posted in: Blog Posts in Cancer So I woke up on the couch last Friday afternoon with wet pants and knowing where I was or what had happened. I was totally in a fog. I got up, walked around, found ... Read on »
Some positive news to focus on by akontarinis Posted in: Blog Posts in Cancer Radiologists saw in the penultimate scan what they thought were metastatic tumors in my one of my iliac bones . I said little about it all since Cho was not convinced ... Read on »
Some positive news to focus on by akontarinis Posted in: Blog Posts in Cancer Radiologists saw in the penultimate scan what they thought were metastatic tumors in my one of my iliac bones . I said little about it all since Cho was not convinc ... Read on »
The many faces of treatment and Decadron by akontarinis Posted in: Blog Posts in Cancer When I first started this journey, I was an avid bicyclist who rode 22 miles a day just to commute to work. I lived in town so I could walk pretty much anywhere I n ... Read on »
I knew something was wrong when… by akontarinis Posted in: Blog Posts in Cancer 4 days after I cogently played baseball in the backyard with the kids I couldn’t find words. I had sentences clear in my head, but they came out in reverse when I s ... Read on »
OK withdrawing sucks by akontarinis Posted in: Blog Posts in Cancer I can endure pain, lots of it but withdrawal from Decadron is killing me. I just switched over to 2mg from 3mg and I am about to keel over. I have no energy, am in ... Read on »
What happened?! by akontarinis Posted in: Blog Posts in Cancer Up at lake Winnie for the WW2 Museum Not that I have been sorely missed or anything but here is a short explanation of where I have been the past week or ... Read on »
back in a few…. by akontarinis Posted in: Blog Posts in Cancer intracranial seizures…temporary situation…”irritable” brain…will be back asap. Read on »