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akontarinis

I am a 40 year old Stage 4 Kidney Cancer warrior. My blog blends updated medical information about cancer and new treatments and my personal experience on this journey and insights on how I am dealing with victories and setbacks.
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Great news today! by akontarinis Posted in: Blog Posts in Cancer I’ll give more details with pics later but for now, we left the hospital knowing that whatever combination of defense the team and I are conducting again my cancer has bee ... Read on »
Big breakthrough today by akontarinis Posted in: Blog Posts in Cancer Our amazing friend Laurie gave us a 3 hour break Saturday afternoon. It was great fun to be alone and do what we wanted. We changed the oil, ran errands, and spent time al ... Read on »
What I did today by akontarinis Posted in: Blog Posts in Cancer Why write such mundane stuff, you ask? Well, partially to practice writing once again. A couple of weeks ago I would not have been able to get this far without a do ... Read on »
Total visits: 40,050 by akontarinis Posted in: Blog Posts in Cancer Another landmark! Thank you for all the visits, supportive words, positive visualization, and all around kindness. This all would have been a lot harder on me and m ... Read on »
Baby steps? by akontarinis Posted in: Blog Posts in Cancer The Decadron is keeping all my large muscles in a state of rubberiness. My legs tends to buckle, my arms are weak. But with each day I am getting stronger and stron ... Read on »
Avastin: Day 1 of treatment by akontarinis Posted in: Blog Posts in Cancer So I woke up on the couch last Friday afternoon with wet pants and knowing where I was or what had happened. I was totally in a fog. I got up, walked around, found ... Read on »
Some positive news to focus on by akontarinis Posted in: Blog Posts in Cancer Radiologists saw in the penultimate scan what they thought were metastatic tumors in my one of my iliac bones . I said little about it all since Cho was not convinc ... Read on »
The many faces of treatment and Decadron by akontarinis Posted in: Blog Posts in Cancer When I first started this journey, I was an avid bicyclist who rode 22 miles a day just to commute to work. I lived in town so I could walk pretty much anywhere I n ... Read on »
I knew something was wrong when… by akontarinis Posted in: Blog Posts in Cancer 4 days after I cogently played baseball in the backyard with the kids I couldn’t find words. I had sentences clear in my head, but they came out in reverse when I s ... Read on »
OK withdrawing sucks by akontarinis Posted in: Blog Posts in Cancer I can endure pain, lots of it but withdrawal from Decadron is killing me. I just switched over to 2mg from 3mg and I am about to keel over. I have no energy, am in ... Read on »
What happened?! by akontarinis Posted in: Blog Posts in Cancer Up at lake Winnie for the WW2 Museum Not that I have been sorely missed or anything but here is a short explanation of where I have been the past week or ... Read on »
back in a few…. by akontarinis Posted in: Blog Posts in Cancer intracranial seizures…temporary situation…”irritable” brain…will be back asap. Read on »
A little more on Deepak Chopra by akontarinis Posted in: Blog Posts in Cancer I had mentioned in an earlier post that my friend Shaun T suggested last year that I give Deepak Chopra a try in my approach mentally with cancer. I tried. It was t ... Read on »
Why I can take a beating by akontarinis Posted in: Blog Posts in Cancer When doing my morning meditation with my dear friend Bodhipaksa we spend 45 minutes together while he teaches me to breathe and to be aware of what feels to be ... Read on »
More gross stuff… by akontarinis Posted in: Blog Posts in Cancer Another piece of tongue met As most of you may know by now, I have an RCC tongue met . Its about the land size of a dime or slightly bigger and it has bee ... Read on »
Embracing fear by akontarinis Posted in: Blog Posts in Cancer Renal Cell kidney One of the things that all RCC people have to deal with is a fear, constant, running in the background every time some new muscle aches ... Read on »
Inspiration by akontarinis Posted in: Blog Posts in Cancer Sometimes when I look for inspiration for my journey, it appears right in front of me, unexpectedly. My son had art school the other night so I stayed home with the ... Read on »
From UCLA: Meditation is GREAT for your brain by akontarinis Posted in: Blog Posts in Cancer An interesting article from the UCLA Bruin about the power of meditation on the brain and the density it helps produce in the brain when performed regularly. ... Read on »
Sometimes I love it when my hike ahead looks like this by akontarinis Posted in: Blog Posts in Cancer Hiker silhouette Hiked these in 2004 in SoCal and will do it again to raise awareness. Read on »