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Abbysworld

Kansas City, Missouri
I am a mother of a 5 year old girl with Rett Syndrome. I devote my life to her care and educating the world on her condition and all things that come with it. I feel strongly that the information I post is true and accurate to the best of my knowledge. I try to show the world that Rett Syndrome... Full Bio
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Temporarily Closed by Abbysworld Posted in: Blog Posts in Children's Health Please feel free to learn,educate and advocate from previous posts. We will be closed for the foreseeable future. We have many links and posts for your enjoyment, God ... Read on »
Finally Research In language I can understand. by Abbysworld Posted in: Blog Posts in Children's Health Don't get me wrong. I'm no dummy....OK for the most part I'm not but do sometimes get tongue tied or freeze when telling people about Research and HOPE for Rett Syndrome. ... Read on »
Thank you Leana by Abbysworld Posted in: Blog Posts in Children's Health A few blog posts ago I went on and on about the Disney Marathon and shared lots of pics with you. What I didn't have at the time was any pics of the woman, then only w ... Read on »
Team Sparkle runs for Rett. by Abbysworld Posted in: Blog Posts in Children's Health Hello all. As I save before I stink at Fundraising! What a way to open a blogpost huh? I need help from you to change all that. Im a quitter. Its terrible ... Read on »
Abby is sleepy by Abbysworld Posted in: Blog Posts in Children's Health Last night, at the time I didn't realize what I was getting. I knew in my head that she was tired and ready for bed but didn't realize she was telling me unt ... Read on »
Vote for Teresa Vejrosta - Kansas City, MO in the 2014 National Mobility Awareness Month Local... by Abbysworld Posted in: Blog Posts in Children's Health Dear Friends, My friend Pam, whom I have mentioned on my blog several times over the years has entered Abby and I in A national contest to win and adaptive van. Only 3 ... Read on »
Best Dressed Baby in the ICU: You know you're the parent of a medically fragile ... by Abbysworld Posted in: Blog Posts in Children's Health A friend posted this blog on Facebook and I have to say it is the most true and applicable to our life things I have ever read. Thank you once again family off Ella Gra ... Read on »
Daddy change the channel by Abbysworld Posted in: Blog Posts in Children's Health The one thing us Special Needs and Rett parents harp on endlessly is the fact that our kids are in there. They are communicating. They can hear you. You ju ... Read on »
Go team! by Abbysworld Posted in: Blog Posts in Children's Health Sometimes in my world of poor me, why me and general selfish boo hooness I forget how fortunate we really are. And as always, she finds a way to remind me. This mornin ... Read on »
Abby can danceydance! by Abbysworld Posted in: Blog Posts in Children's Health Last night Abby was on a roll. She was dancing and giggling and likes she does, she wanted me to sing every song and dance with her. I sat down next to the tv so she could ... Read on »
New research funding puts Rett Syndrome cure on the horizon | Business Standard by Abbysworld Posted in: Blog Posts in Children's Health I woke up this am to find the most amazing news. We are on our way...and as we sometimes forget....there is hope. Researchers from  Scotland  and the US are taking ... Read on »
When she's sick she's better by Abbysworld Posted in: Blog Posts in Children's Health Abby has Pneumonia so why the weird title? I wish I could show you on video but as with everything Rett, on command isn't really a possibility. Abby woke up 3 day ... Read on »
A Change in Abby. (Take that, Rett Syndrome!) by Abbysworld Posted in: Blog Posts in Children's Health There has been a change in Abby lately that I have been amazed by. It kind of snuck up on us and every day she surprises us a little bit more. As per usual it takes me ... Read on »
Sometimes I forget by Abbysworld Posted in: Blog Posts in Children's Health Sometimes I forget that Abby has something "wrong" with her. Lately its been easy to just accept her as her and our life for what it is. Without realizing it consciously I ... Read on »
Time to fess up by Abbysworld Posted in: Blog Posts in Children's Health Hey all. First I want to apologize for abandoning this blog. I was not my intention and I do one day hope to get back to it. As it is what happens sometimes, real life ... Read on »
I Don't Like Kids! by Abbysworld Posted in: Blog Posts in Children's Health Strange thing to say coming from me huh? It's not just because I'm a special needs Mom and I'm jealous. I didn't like kids before. Except for mine. I guess because I'm ... Read on »
Why I don’t support Autism Speaks (which is why I don’t ‘light it up... by Abbysworld Posted in: Blog Posts in Children's Health April 2nd is World Autism Day and I thought having a well respected and recognized mother of 2 Autistic boys would be the perfect guest blogger with a message I feel passio ... Read on »
Almost ready by Abbysworld Posted in: Blog Posts in Children's Health Today someone asked me why I haven't been blogging right as I was taking pics to add to a blog post. I told you all a while ago that I was tired of myself being a negativ ... Read on »
Abby's still moving and grooving. by Abbysworld Posted in: Blog Posts in Children's Health Last night we were sitting watching Dora as her majesty commands and i grabbed my phone as she was up walking,dancing and trying to play with her cause and effect music toy ... Read on »